Why Advocacy Counts and Makes a Difference


IF ONE MORE IGNORANT PERSON tells me that they have a cure for Type1 Diabetes, I am really going to scream!!! While shopping, I was discussing health and wellness with a holistic healer.  For whatever reason, when I mentioned my brother engages in a wellness regimen to manage his illness, she told me that there was a cure!  When I said, “he is TYPE1 – Insulin Dependent, NOT Type2,” she assured me I was wrong and that he really does not need insulin but diet and exercise.  AS IF I do not know what I am talking about, having personally dealt with the disease for 10 years.

In an earlier post, When a Cause Hits Home – Volunteering with a Personal Purpose, I described my brother’s struggle with Type1 Diabetes.  An autoimmune disease, his life DEPENDS on daily doses of insulin and blood sugar measurements through finger sticks.  His pancreas DOES NOT function.  He did not acquire diabetes through diet or any behavior of his own.  Doctors, meaning Endocrinologists, believe that an environmental trigger stopped his pancreas from working, and he was genetically predisposed to Type1.  He has never been obese or overweight, in fact, at 6’0, he struggles to maintain a weight over 140 lbs.  Anyone who would suggest he STOP using insulin very ignorant about the disease. 

Sadly, this is not the first person to tell me that my Type1 brother does not need insulin to survive. Maybe these people would like to see what happened when he had a bad batch of insulin. He ended up in ICU for 5 days and nearly died. 

My rant has a point.  Advocacy and education about YOUR cause is vital to the public receiving information about the issue at hand.  Potential donors, volunteers, and supporters MUST know the FACTS and MYTHS about issues, such as Type1.  Otherwise, they will not understand the urgency families are experiencing as everyday 80 more people are diagnosed with this life threatening disease.   Everything on the outside seems fine, but inside the lives of these families there is struggle, fear, depression, anxiety, and a glimmer of hope…that one day…their loved one will be cured.  

Advocating and educating the public and other stakeholders does not mean you have to march on Washington and storm the state house.  It can be as simple as making a YouTube video about your personal experience, writing a guest blog for an organization working on your cause, sharing information through social media contacts to raise awareness, and correcting ignorant people whose suggestions could harm a loved one, should you follow the advice.

JDRF, the leading organization fighting for a cure for Type1 has done a great job in encouraging families to share their personal experiences with the disease on YouTube.  In turn, these videos are shared on Twitter and other social media platforms.  These experiences are personal, inspire others to action, and provide a face for the disease.  You can make a difference through advocacy and education for your cause.  Get involved today!

How are you advocating for YOUR cause?  Please share.  Make YOUR difference in the world…Volunteer!

JDRF

Diabetes Mine

American Diabetes Association